Planning for more uptime
Uptime routines
Strategies toolkit
ActiveRett was developed as part of a grant awarded to Telethon Kids Institute by the International Rett Syndrome Foundation to increase physical activity in Rett syndrome.
You can get in contact with the Rett team by emailing Jenny at Jenny.Downs@telethonkids.org.au
We would like to acknowledge the contributions of Anisha Chowdhury and Christopher Dougherty in the creation of the ActiveRett material.
The co-design team
ActiveRett could not have been made possible if it weren't for the insights, trust, and collaboration with our co-design team. We'd like to acknowledge and deeply thank them for their contributions and ongoing support, with special mention to Geoff, Mark, Mandy, Kerrie, Jane, and Claude.

Kerrie and Cheyenne Carmichael, Victoria

Claude and Annelise Buda, New South Wales

Jane and Leana Eikelboom, Western Australia

Mark and Jess Ward, New South Wales

Mandy and Sarah Gale, Tasmania

Geoff and Morgan Wishart, Western Australia
Our researchers

Jenny Downs
Program Head, Development and Disability
Telethon Kids Institute, Australia

Michelle Stahlhut
Researcher
Center for Clinical Research and Prevention, Denmark

Marie Blackmore
Senior Research Officer
Telethon Kids Institute, Australia

Helen Leonard
Principal Research Fellow
Telethon Kids Institute, Australia

Meir Lotan
Senior Lecturer, Physical Therapy Department
Ariel University, Israel

Cochavit Elefant
Head of Music Theraphy program
University of Haifa, Israel