Planning for more uptime
Uptime routines
Strategies toolkit
ActiveRett was developed as part of a grant awarded to Telethon Kids Institute by the International Rett Syndrome Foundation to increase physical activity in Rett syndrome.
You can get in contact with the Rett team by emailing Jenny at Jenny.Downs@telethonkids.org.au
We would like to acknowledge the contributions of Anisha Chowdhury and Christopher Dougherty in the creation of the ActiveRett material.
The co-design team
ActiveRett could not have been made possible if it weren't for the insights, trust, and collaboration with our co-design team. We'd like to acknowledge and deeply thank them for their contributions and ongoing support, with special mention to Geoff, Mark, Mandy, Kerrie, Jane, and Claude.
![Kerrie and Cheyenne Carmichael](/contentassets/fdf0e63c0a3a41b3a74de68e2eca923a/kerrie-and-cheyenne-carmichael-1.jpg)
Kerrie and Cheyenne Carmichael, Victoria
![Claude and Annelise Buda](/contentassets/fdf0e63c0a3a41b3a74de68e2eca923a/claude-and-annelise-buda-sq.jpg)
Claude and Annelise Buda, New South Wales
![Jane and Leana Eikelboom](/contentassets/fdf0e63c0a3a41b3a74de68e2eca923a/jane-and-leana-eikelboom-1.jpg)
Jane and Leana Eikelboom, Western Australia
![Mark and Jess Ward](/contentassets/fdf0e63c0a3a41b3a74de68e2eca923a/mark-and-jess.jpg)
Mark and Jess Ward, New South Wales
![Mandy and Sarah Gale](/contentassets/fdf0e63c0a3a41b3a74de68e2eca923a/mandy-and-sarah-gale.jpg)
Mandy and Sarah Gale, Tasmania
![Geoff and Morgan Wishart](/contentassets/fdf0e63c0a3a41b3a74de68e2eca923a/geoff-and-morgan-wishart.jpg)
Geoff and Morgan Wishart, Western Australia
Our researchers
![Portrait of Jenny Downs](/contentassets/2c473f876be44933ac2e1e77a814d430/jenny.jpg)
Jenny Downs
Program Head, Development and Disability
Telethon Kids Institute, Australia
![michelle stahlhut.jpg](/contentassets/d2c5922786b64a0389a70bfd0d7b7a78/michelle.jpg)
Michelle Stahlhut
Researcher
Center for Clinical Research and Prevention, Denmark
![Portrait of Marie Blackmore](/contentassets/6469a1e183374137adc51639b969fe66/marie.jpg)
Marie Blackmore
Senior Research Officer
Telethon Kids Institute, Australia
![Portrait of Helen Leonard](/contentassets/7702f6609dd447a4a81075ef1cf89397/helen.jpg)
Helen Leonard
Principal Research Fellow
Telethon Kids Institute, Australia
![Portrait of Meir Lotan](/contentassets/67161a0d359a40c2a4e3bd923db3646d/meir.jpg)
Meir Lotan
Senior Lecturer, Physical Therapy Department
Ariel University, Israel
![Portrait of Cochavit Elefant](/contentassets/332c3d78535447ec80ac0724e3b2c715/cochavit.jpg)
Cochavit Elefant
Head of Music Theraphy program
University of Haifa, Israel