Skip to content



  • Take time out for yourself; maintain your interests.
  • Don’t ignore your own health problems.
  • Don’t try to do everything: Choose which activities you want to do with your child and which activities you want to hand over others.
  • Practice mindfulness.
  • Take breaks.
  • Get regular exercise.


  • Maintain your social contacts.
  • Live all your roles, not just your caregiver role.
  • Make use of available supports.
  • Advocating for your child with organizations can be stressful. So pick your battles: Choose which issues you are prepared to fight for and which you are prepared to let go.
  • Many caregivers worry about their child’s future: Talk about the issues with your family and plan ahead.
  • Get involved with support groups (such as your Rett syndrome Association) and with local non-disability groups (such as your local footy club, your church, your family), whatever works for you.


For help on mental health and wellness, go to

Talk to your healthcare team about issues relevant to you and your family.

Click here for a downloadable version of this page.

Telethon Kids Institute