Assess your individual situation. Talk with family members, therapists, and support workers, and the person with Rett syndrome. Write down the answers to the following:
- What are the person’s motor skills?
- Can the person stand or walk on their own or do they need help?
- How long can they stand or walk for?
- How long does the person sit? You may consider planning breaks for movement during long periods of sitting.
- What are the person’s interests?
- Are there activities or tasks that they particularly like? For example, do they like being with people or outdoors?
- Are there activities that can provide responsibility for the person with Rett syndrome in household tasks?
- What are your usual schedules and activities?
- Think about routines when getting up in the morning, during the day, after school or activity centre, and when going to bed in the evening for uptime opportunities.
- Think about activities with siblings, friends, neighbours, etc.
- Who are your available support persons for regular uptime activities?
- Who in your family can support the person’s uptime routines?
- Are there persons at school or activity centres, or in your home or community who can support uptime routines?
- Are there other carers or people in your life who can support uptime routines?
- What equipment could help?
Make a list of what uptime activities could be practiced, where and when, who with, and whether new equipment is needed.