How Can You Participate?
The InterRett and MDBase are important databases for the collection of health-related information on Rett syndrome and MECP2 duplication syndrome respectively. You can participate in our research from anywhere around the world. If you are interested in being involved, please register your contact details at the registration page.
If you are a clinician or healthcare professional currently caring for children or adults with either Rett syndrome or MECP2 duplication syndrome, we would like to invite you to share our website with your patient' parents or complete the questionnaire yourself. You can enter information through our website or by paper. Please send us an email at Helen.Leonard@telethonkids.org.au to discuss options.