About
Rett syndrome is a rare but serious neurological disorder that affects about 1 in 9,000 girls. Even more rarely, boys may be affected.
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Rett syndrome is a rare but serious neurological disorder that affects about 1 in 9,000 girls. Even more rarely, boys may be affected.
We aim to share our research findings with families so that they may better understand Rett syndrome and the future for their family.
These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.
We aim to share our research findings with families so that they may better understand Rett syndrome and the future for their family.
We aim to improve knowledge and understanding of Rett syndrome by monitoring patterns of occurrence, investigating its impact on daily living and health, determining relationships between genotype and clinical characteristics, and identifying use and effectiveness of treatments.
We aim to share our research findings with families so that they may better understand Rett syndrome and the future for their family. We are also developing resources for health professionals who care for those with Rett syndrome.