These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.
Helen Leonard, Carol Bower, Nick de Klerk, Alison Anderson, Ami Bebbington, Jenny Downs, Peter Jacoby, Kingsley Wong, Katherine Bathgate, Janice Lim, Stephanie Fehr, Amanda Jefferson, Anna Urbanowicz, Joanne Lee
The development of research partnerships is a priority for InterRett. In this way, centres or clinicians with access to large numbers of patients with Rett syndrome can collaborate and make joint use of data.
We are keen to facilitate partnerships in terms of collection, storage and sharing of data. Memoranda of understanding can be established flexibly catering to the differing needs of various centres.
Centres currently developing partnerships include: