These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.
Rett Syndrome Association of Australia The Rett Syndrome Association of Australia provides invaluable support and resources to families of Rett girls in Australia. In April 2007 it hosted a family get-together in Sydney to coincide with Kathy Hunter's visit to Australia. Kathy is the president and founder of the International Rett Syndrome Association. The weekend was a great success.
Mr Bill Callaghan is the founder and president of the Rett Syndrome Association of Australia since 1989. In June 2012 Bill was awarded an Order of Australia medal for for service to community health through founding and leading the Rett Syndrome Association of Australia. For more information click here.
Bill's contact details are: GPO Box 3497 Melbourne, Victoria 3001 Mobile phone: (03) 0418 561 796 E-mail: firstname.lastname@example.org A newsletter is also available from the Rett Syndrome Association of Australia.
ANZACRett is an online discussion group created by a mother with a daughter with Rett syndrome- for all Australian and New Zealand families who also have a child/adult affected by Rett syndrome, their caregiver and friends. It is a forum for discussion onany issues related to Rett syndrome and a place to share experiences and thoughts. Whilst international discussion groups are valuable, some of the information may be less relevant to families "Down Under".Therefore ANZACRett was developed as a place where Australian and New Zealand families can meet onlineand share local information on resources, equipment, devices or just stay in contact. ANZACRett is a closed group and membership is approved by a moderator to protect families.