A Telethon Kids Institute Website
Rett syndrome is a rare but serious neurological disorder that affects about 1 in 9,000 girls. Even more rarely, boys may be affected.
We aim to share our research findings with families so that they may better understand Rett syndrome and the future for their family.
These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.
Do you mean
We have many projects currently looking for study volunteers. If you would like to be involved in the research or want further information, please use the contact details provided.
Participate in CDKL5 Research
Participate in InterRett / MECP2 Duplication Research
Participate in AussieRett
To find out any more information about how you can be involved, don't hesitate to contact us.
Phone: +61 419 956 946 | +61 8 6319 1761