Skip to content

Our research is funded by the following grants:

National Health and Medical Research Council Project Grant
Towards evidence-based care for Rett syndrome: a research model to inform management of rare disorders

Australian Research Council
Psychosocial and Economic Impacts of Rare Diseases on Australian Children, Families and Health Professionals

Australian Research Council
The transition from secondary school to adulthood: experiences and life outcomes for youth with an intellectual disability and their families

HeART grant awarded by the International Rett Syndrome Foundation
Daily physical activity in girls and women with Rett syndrome: An important outcome for clinical trials

International Rett Syndrome Foundation
InterRett: International Rett Syndrome Phenotype Database

Rett Syndrome Association UK
Development and evaluation of management guidelines for Nutrition, Growth and Fracture Prevention in Rett syndrome

Telethon Kids Institute