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We reviewed the evidence in the literature and also family concerns expressed over a 15-month period in postings on RettNet, to explore firsthand perspectives on the girls' GI issues. We then worked with an international expert panel of clinicians and researchers to develop recommendations for the assessment and clinical management of a range of GI disorders in Rett syndrome including gastroesophageal reflux disease (GERD), constipation, and abdominal bloating.
Telethon Kids Institute