Research Collaborators

Australian Collaborators

 

Australian Families and Carers


Telethon Kids Institute, Perth

Helen Leonard, Carol Bower, Nick de Klerk, Alison Anderson, Ami Bebbington,  Jenny Downs, Peter Jacoby, Kingsley Wong, Katherine Bathgate, Janice Lim, Stephanie Fehr, Amanda Jefferson, Anna Urbanowicz, Joanne Lee


Curtin University, Perth
Sue Fyfe, Amanda Jefferson, Joanne Lee

 

The Australian Paediatric Surveillance Unit, Sydney

Elizabeth Elliot, Yvonne Zurynski

 

The Children's Hospital at Westmead, Sydney

John Christodoulou, Carolyn Ellaway, Meredith Wilson, Bruce Bennetts, Elizabeth Elliott

 

Mater Children's Hospital, Brisbane

Honey Heussler, Geoffrey Askin, Maree Izatt, Ivan McGowan,


The Royal Childen's Hospital, Melbourne
Gordon Baike, Ian Torode


Sydney Children's Hospital
Helen Woodhead


Princess Margaret Hospital for Children, Perth
Lakshmi Nagarajan, Peter Rowe, Peter Walsh, Madhur Ravikumara, Aris Siafarikas, Simon Williams


University of Chicago
Michael Msall


Women's & Children's Hospital, Adelaide
Elizabeth Thompson


Royal Perth Hospital
Mark Davis


Kennedy Krieger Institute Johns Hopkins Medical Institutions, Baltimore, MD, USA
Walter Kaufmann

 

The University of Alabama

Alan Percy

 

 

International partnerships

 

The development of research partnerships is a priority for InterRett. In this way, centres or clinicians with access to large numbers of patients with Rett syndrome can collaborate and make joint use of data.

We are keen to facilitate partnerships in terms of collection, storage and sharing of data. Memoranda of understanding can be established flexibly catering to the differing needs of various centres.


Centres currently developing partnerships include:

Israel Rett Syndrome Center
Tel Aviv

Dr Bao
Peking University
China

Dr Nadia Bahi-Buisson
Hospital Necker Enfants Malades
Paris


Dr Mercedes Pineda
Hospital Sant Joan de Deu
Spain

Dr Patrick MacLeod
Victoria General Hospital
Canada

Dr Violeta Medina-Crespo
Mexico

Contact us if you are interested in finding out more about bulk data collection and partnerships with InterRett.