These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.
Helen and Jenny visited Shenzhen in the south of China twice during 2013 to talk with clinicians at the Shenzhen Children's Hospital and the families from the Shenzhen Rett Syndrome Family Association. This is a wonderful opportunity to make links with those affected by Rett syndrome in our region. They are also keen to collaborate in a small study in which we will assess the effects of early intervention on young girls with Rett syndrome. We are hoping that the pilot study will begin in January 2014.