These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.
Taylor is a remarkable young woman who is leading an active country life with the support of her family and the local community. Taylor has Rett syndrome and her family have been participating in AussieRett since she was a toddler. Now 17 years of age, she has just graduated from high school and been named Blackall's Young Citizen of the Year - an area in Western Queensland, Australia. Journalist Brendan Mounter from the ABC spent time with her and her family and produced this great television story.