First published Tuesday 15 September 2015.
Contact Us
To find out any more information about how you can be involved, don't hesitate to contact us.
Email: Helen.Leonard@telethonkids.org.au
Phone: +61 419 956 946 | +61 8 6319 1761
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Rett syndrome is a rare but serious neurological disorder that affects about 1 in 9,000 girls. Even more rarely, boys may be affected.
We aim to share our research findings with families so that they may better understand Rett syndrome and the future for their family.
These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.
During this webinar Dr Leonard will give a background and history of InterRett; provide examples of what the study has achieved in the past with your input; describe the aims and rationale for our new study; and discuss how old and new families can join us in this endeavour. We will show you how you can view graphs on our website that display the core Rett syndrome features and their relationships with genotype. We will also point you to our research snapshots where you can find easy-to-read summaries of our publications.
Please note: This video file may take a few minutes to download, depending on the speed of your Internet connection. The video can be viewed by your computer's media player (e.g. Windows Media Player, VLC, Quicktime). If you have any difficulties viewing the video, please email us at: Rett@telethonkids.org.au
First published Tuesday 15 September 2015.
To find out any more information about how you can be involved, don't hesitate to contact us.
Email: Helen.Leonard@telethonkids.org.au
Phone: +61 419 956 946 | +61 8 6319 1761