These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.
The InterRett database: Looking back and looking forward. What we have done and can do with your involvement!
Click the photo below to download Dr Helen Leonard's online webinar hosted by Rettsyndrome.org
During this webinar Dr Leonard will give a background and history of InterRett; provide examples of what the study has achieved in the past with your input; describe the aims and rationale for our new study; and discuss how old and new families can join us in this endeavour. We will show you how you can view graphs on our website that display the core Rett syndrome features and their relationships with genotype. We will also point you to our research snapshots where you can find easy-to-read summaries of our publications.
Please note: This video file may take a few minutes to download, depending on the speed of your Internet connection. The video can be viewed by your computer's media player (e.g. Windows Media Player, VLC, Quicktime). If you have any difficulties viewing the video, please email us at: Rett@telethonkids.org.au