A Telethon Kids Institute Website
Rett syndrome is a rare but serious neurological disorder that affects about 1 in 9,000 girls. Even more rarely, boys may be affected.
We aim to share our research findings with families so that they may better understand Rett syndrome and the future for their family.
These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.
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Our AussieRett team recently visited Melbourne, Australia for the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) 15th World Congress.
The team presented information on:
Pictured below is Helen's panel discussion regarding the "Genetic architecture of neurodevelopment disabilities".
First published Tuesday 6 September 2016.
To find out any more information about how you can be involved, don't hesitate to contact us.
Phone: 0419 956 946 | (08) 6319 1761